Thank you to Pfizer Pharmaceuticals UK division for the interview today to create a video on my story to be posted on their website for World Sepsis Day! Video to come! stay tuned…………….

I’m humbled to share my story as a patient living with an antibiotic resistant infection along with several others at the @UN High-Level Meeting Thursday April 29th at 4:15 EST.
View the livestream here:

https://t.co/mhPM8NDzIm

Thank you “American Society of Clinical Pathology” for sharing my story and allowing me to thank lab workers who save patient’s lives with correct data and doctor communication!

Click to see the page:

https://www.ascp.org/content/patient-champion/resources/pseudomonas-aeruginosa

Nesta Challenges is a British funding firm that grants money to anyone or a business that is making a difference in the fight against Superbugsl I am humbled and honored that they dained to interview me as I talk infections, AMR in Covid times, and the antibiotic pipeline drying up. I also talk antibiotic stewardship. It is so important that patients raise their voices in the fight against AMR.

Read here:

https://challenges.org/blog/amr-voices-raising-awareness-usa/

As we all know Covid has forced many conferences to cancel this year but MAD-ID has developed a webinar so we can continue to offer education credits to healthcare workers. I had the honor to present with Kerry LaPlante PharmD (Moderator) and Edward Septimus M.D. to talk sepsis from a clinical and patient perspective.

Goal: To provide an online continuing professional educational program to educate interested healthcare providers on the latest recommended sepsis guidelines and to appreciate sepsis from the patient perspective.

Target Audience:  Clinical Pharmacists, Physicians, Advanced Practice Nurses and Physician Assistants

Learning Objectives:

1. Recommend guidelines and protocols to improve diagnosis and antibiotic therapy for sepsis
2. Explain the evolving incidence and epidemiology of sepsis
3. Identify best practices for antimicrobial stewardship in sepsis
4. Explain how patient advocacy can influence clinical practice in the management of sepsis
5. Describe challenges in communication between healthcare providers and patients with sepsis and their caregivers
6. List strategies to empower patients in decision-making regarding infections and antimicrobial use

Activity Type:
Knowledge

Speakers:
Edward J. Septimus, MD, FIDSA, FACP, FSHEA
Texas A&M College of Medicine

Mary Millard, M.Ed
International Patient Speaker

MAD-ID is accredited by the Accreditation Council for Pharmacy Education as the provider of continuing pharmacy education. 1.5 CEU will be awarded for either of these programs.
UAN #0485-0000-20-023-H01-P (Sepsis)

STEP 1: Visit our training website log-in page: (https://mad-idtraining.org/certification/login/index.php) and set up a user account (if you don’t already have one)

STEP 2: Log into your new account and view our courses; select either Implementing the 2020 Vancomycin Guidelines or Sepsis 2020 option under MAD-ID WEBINARS 2020

Note: No enrollment code is required to participate in these programs.

STEP 3: Watch the presentation/recording

STEP 4: Complete the program evaluation

STEP 5: Take (and pass) the learning assessment quiz – minimum passing grade: 80%

STEP 6: Click on Activity Completion

 

Best of luck!

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Pew Health Superbug2020 Fly in to Washington D,C. was a grand success.

I joined ID Pharma, ID physicians, patient advocates, and Pew HAI project people as we hit Capitol Hill visiting with Congress people and their staff to urge more funding for the NIH and CDC raising awareness of the growing antibiotic resistance problem as well as the antibiotic pipeline drying up.

Left to right

Erica Washington from the Louisiana Dept of Public Health

Deanne Tabb, Pharma ID Piedmont Hospital System

Myself

Dr. Cassandra Quave of Emory University Drug Discovery program

 

 

Part of day one was testifying to agency officials from the CDC, NIH, FDA and more at the Presidential Advisory Council for Combating Antibiotic Resistance.

All in all, a great few days talking to our representatives about increasing funding and raising awareness on how this affects patients and that we must increase research on new antibiotics, not simply re-purposing existing ones. Thank you Pew Health!!!!

Had a remarkable learning and teaching experience at the 2019 World AMR Congress in Washington D.C..

Thank you for the opportunity to share my story and talk patient advocacy with an international audience.

Myself and fellow speaker Christian Lillis founder of the Peggy Lillis Fund as we share our stories and speak to the hurdles we see for patient advocates.

 

A great group photo with Pharma ID group! Many ID Pharm folks attended.

 

 

 

 

 

Great group from the Presidential Advisory Council on Antibiotic Resistance. I spoke at their meeting in 2017.

 

I hold the honor of being they Keynote speaker on day 2 of the World AMR Congress in Washington D.C. on November 7 & 8.

Launched during the release of key reports such as the AMR Review and A Scientific Roadmap for
Antibiotic Discovery, the World AMR Congress has brought attention to the threats of this emerging crisis to
the global healthcare system.
The conference gathers global leaders in infectious diseases to meet, brainstorm and discuss the
challenges and opportunities on seven topic areas:
• Antibiotic R&D: advancing the development of antibiotic and non-traditional therapies and improving
commercialization strategies
• Diagnostics: innovating the development and deployment of rapid diagnostics tests, while ensuring an
effective integration into hospitals’ workflow and reimbursement
• Antimicrobial stewardship: using technology to improve antibiotic prescription, monitoring and
surveillance while advancing stewardship-based purchasing guidelines
• Pitch & Partner: joining funding and partnerships with antibiotics and diagnostics innovation
• Infection Control: advancing policies to improve infection prevention, control and compliance in
healthcare facilities
• Manufacturing: overcoming challenges for a sustainable and controlled antibiotic manufacturing and
supply chain
• Vaccines: discussing the clinical and economic value of vaccines to combat AMR
This November 7-8, 2019, 600 attendees from over 40 countries will be gathered at the Renaissance
Washington, D.C. Downtown Hotel for the largest AMR conference ever.

I will also be holding a round table session later in the afternoon on prevention for hospitals and what patients can do. Below is a link to the schedule as well as featured speakers. If you are in the industry, please consider attending….

World AMR Congress Brochure & Information

Thank you Pfizer Pharmaceuticals for allowing me to share my patient story at the Latin American sales conference in Miami! A fun team for sure and the great news is they just developed a new antibiotic geared specifically towards Pseudomonas. It received FDA clearance the day before my speech!

( My conference techies!)

Thank you for having me out and keep up the good fight in the antibiotic spectrum!

This talk led to a great WEB EX speech to Pfizer in Dubai for their Eastern sales conference. They have never heard a patient story and had dozens of great questions.

Had a great response as I shared my patient story at Locus Bioscience in RTP North Carolina.

Locus is a young research company that has been developing CRISPR genomics to aid in the application of Bacteriophage therapy by directing it to specific genes in the bacterium it is attacking. This novel therapy is on the cutting edge of eliminating bacteria infections form patients. They are working closely with the new FDA division of Novel Therapeutics.

Thank you team!